Leukapheresis for HIV cure: a volunteer’s experience…
By Carlos Araya, Peer Navigator at LPV
In my work, staying informed about HIV treatments and research is essential. Conversations about a cure come up frequently. People ask, “When will the cure be found?” “Why has it taken so long?” “What if a cure is discovered but not a vaccine?” and “How will it work—will it be a simple injection or a complex process?” These questions highlight our shared vulnerability. While HIV itself is manageable, navigating life with the added burdens of systemic discrimination, stigma, and uncertainty can erode confidence.
This personal journey deepened my commitment to supporting HIV advancements, especially research into a cure. Although injectables work well for me, I know many in our community still face barriers. Some experience severe side effects, others struggle with adherence due to mental health challenges, and many still lack access to treatment entirely. I realized that while I’m fortunate now, a cure could change countless lives.
When I heard about a Victorian HIV cure research study, I knew I wanted to participate. The first time I applied, I wasn’t eligible because I didn’t have Medicare. Months later, I revisited the opportunity, this time as a blood donor for the REVEAL Study at the Alfred Hospital. Though it wasn’t the kind of trial involving experimental treatment, I learned how vital these studies are for advancing the science behind a cure.
The donation process was much simpler than I had anticipated. After expressing interest, I received clear, accessible information about the study. The first step was a screening to confirm my eligibility. This involved answering some questions about my health history, current treatment, lifestyle and some blood samples. The team walked me through everything in detail, ensuring I felt comfortable and informed at every stage.
Once I was approved, we scheduled the blood draw. On the day of the donation, I arrived at the research centre for the leukapheresis procedure. This advanced process is designed to collect white blood cells, which play a critical role in HIV research. Unlike a standard blood draw, leukapheresis is a specialized procedure that takes approximately four hours.
Here’s how it works: a small tube is inserted into a vein in one arm to draw blood, which is then passed through a machine that separates white blood cells. The rest of the blood is returned to your body through a vein in the other arm. Throughout the procedure, I was comfortably on a bed, with plenty of time to read, watch videos, or even nap. Although, I spent most of my time chatting with staff, who monitored me closely regularly, ensuring I felt at ease at every step.
After the donation, I was given time to relax, with snacks and drinks provided to ensure I felt well before leaving. The entire process—from arrival to departure—was under 4 hours. It was one of the easiest and most rewarding things I’ve ever done. Participating in this study reminded me that contributing to the search for a cure doesn’t have to mean undergoing intensive medical trials. Sometimes, it’s as simple as showing up and rolling up your sleeve. These small acts of support are the building blocks for breakthroughs that could change the world.
We are at an extraordinary point in history, where the possibility of a cure for HIV is within reach. But the success of these efforts depends on all of us—our willingness to take part, to advocate, and to support the scientific community. Every blood sample collected, every person who participates, brings us closer to that reality.
If you’ve ever wondered how you can make a difference, this is your chance. Imagine a future where HIV no longer defines or limits anyone’s life. A world where treatment is no longer a necessity, and stigma becomes a thing of the past. We all have the power to help make that future a reality, one small action at a time.
So, if you’re eligible, I encourage you to consider joining an HIV cure study. Whether it’s donating blood, volunteering for trials, or simply spreading the word, your contribution matters. Together, we can turn hope into history. The cure isn’t just a dream—it’s a destination we’re building, one step, one sample, one person at a time.
If you would like to be a study participant or donor like Carlos, call 03 9076 6908 or email clinresearch@alfred.org.au
This article was featured in the Victorian HIV Cure Volunteer Database newsletter, by The Alfred Hospital and The Doherty Institute. You can read the full newsletter here.
You can sign up to be a volunteer here.